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ME/CFS Tasmania is a Tasmanian run state-wide support service for people with ME/CFS, their families, friends and carers in Tasmania.


It is a community based website that was established late 2010 by many people from different back grounds who wanted to give the people their very own website. It is NOT to replace or take-over other existing websites or establishments, but to compliment them, & to encourage & guide other users to a wealth of Information & Resourses that already exist. 

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Welcome to Myalgic Encephalomyelitis: Chronic Fatigue Syndrome Tasmania

Neurological disorder - ICD 10, G.93.3, World Health Organisation (WHO) 1969

ME/CFS Tasmania is a not-for-profit organisation run by a small group of volunteers dedicated to providing information, support for the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome community in Tasmania. The vision of ME/CFS Tasmania is to be an organisation which has a significant and positive influence on the wellbeing of people affected by ME/CFS throught out the entire state.

hand-holding-tasmania"[With ME/CFS] the patient's activity level is reduced by approximately 50% or more. Some patients are housebound or bedridden and dependent on others for their daily care. ME/CFS is "actually more debilitating than most other medical problems in the world" including patients undergoing chemotherapy and HIV/AIDS patients..."

Curruthers, B & van de Sande, M (2005) 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A clinical case definition and guidelines for medical practitioners, an overview.

 

Chronic fatigue syndrome (CFS) is a disorder that causes extreme fatigue. This fatigue is not the kind of tired feeling that goes away after you rest. Instead, it lasts a long time and limits your ability to do ordinary daily activities.

Symptoms of CFS include fatigue for 6 months or more and experiencing other problems such as muscle pain, memory problems, headaches, pain in multiple joints, sleep problems, sore throat and tender lymph nodes. Since other illnesses can cause similar symptoms, CFS is hard to diagnose.

No one knows what causes CFS. It is most common in women mainly from mid teens onwards, but anyone can have it. It can last for years. There is no cure for CFS, so the goal of treatment is to improve symptoms. Medicines maytreat pain, sleep disorders and other problems.


Last Updated on Sunday, 17 April 2011 10:45
 
XMRV PDF Print E-mail

XMRV and chronic fatigue syndrome

15 OCTOBER 2009

 A retrovirus that has been implicated in prostate cancer has now been found in the blood of patients with chronic fatigue syndrome. What is this virus and where did it come from?

Chronic fatigue syndrome (CFS) is a disease characterized by fatigue and chronic inflammation that can last years and may affect ~1% of the world’s population. The etiology of the disease is unknown, although several viruses have been suggested to be involved, including enteroviruses and herpes viruses.

 

Last Updated on Saturday, 12 March 2011 22:11
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ME/CFS - Not a New Syndrome PDF Print E-mail

Susan Hilder who has suffered from Chronic Fatigue Syndrome for most of her life, and Tegan Craig a 15 year old who was diagnosed last year, came into the Launceston Studios of ABC Radio Launceston, Tasmanaia. Penny Abrahams CEO of the Australian Network ME/CFS also took part in the round table discussion about CFS.

Listen to the Broadcast Here:

For full details visit Radio 7NT: ABC Tasmania's Blog

Last Updated on Monday, 28 March 2011 16:28
 
PDF Print E-mail

Causes of Myalgic Encephalomyelitis

TasLogo120x

M.E. can occur in both epidemic and sporadic forms. Over 60 M.E. outbreaks have been recorded worldwide since 1934.

M.E. is an acutely acquired neurological illness initiated by a virus infection. There is also good evidence to suggest the cause is an enterovirus (the same type of virus that causes polio).

This point of view is supported by history (ME epidemics have followed polio epidemics and serological studies have shown that communities affected by an outbreak of M.E. were effectively blocked (or immune) from the effects of a subsequent polio outbreak), incidence (correlation with a flu-like prodromic illness), symptoms (swollen lymph nodes, low-grade fever, sore throat), and similarities with other viral ailments, notably mononucleosis and post-polio syndrome. Research also supports a viral causation for the illness.

 

 

 

 

 

 

 

 


Read more...
 
When Misguided Doctors Do More Harm Than Good PDF Print E-mail

WHITTEMORE PETERSON Institute for Neuro-Immune Disease The UK Pace Trials? When Misguided Doctors Do More Harm Than Good .

Cognitive Behavioral Therapy/CBT and Graded Exercise Therapy/GET were devised as support therapy for those with primary depression who are otherwise healthy.

It's well known that genuine M.E. and CFS patients suffer from physical infectious symptoms such as sore throat, lymphadenopathy, low grade fever, night sweats and other flu like symptoms which make it irrational - and culpable - even to suggest CBT or GET as treatments.

Last Updated on Monday, 28 March 2011 16:28
Read more...
 
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